Last updated 19/12/2018 by The pain clinics - Interdisciplinary Health

- Living with myalgic encephalopathy (ME)

What exactly is myalgic encephalopathy (ME) and what does this disease do to you? Myalgic encephalopathy (ME) is also known as chronic fatigue syndrome. ME is a relatively rare disease that the WHO has placed in the category 'Diseases of the nervous system' - this is because the condition can cause neurological symptoms, immune system symptoms and generally affect the whole body. Ida Christine Olsen (26) is affected by this syndrome - and has written this article for us about what it is like to live with ME and how she copes with it in the best possible way.

- When the day becomes a challenge

How to get through the days where you are extremely exhausted, have pain in all muscles and joints - where you have temperature changes that in one second can make you freeze while in the next second make you sweat like a waterfall. Where you have a conversation with another human being and 'suddenly' loses speech and is unable to get the words you really want to say. You try to concentrate on something, but only end up in despair and frustration. You may be bedridden for many days and wake up the next day with a sore throat and not understand how you have managed to catch a cold. You have not even been outside the door.

- First report as a 13-year-old

I am a 26 year old girl who was examined for exhaustion for the first time when I was 13 years old. For the first few years, I did not really understand what was wrong with me, so I did like most young people - went to school, played active football and was with friends. What is with ME is that there are different degrees and fluctuations. Some have a mild degree, while others have a moderate to severe degree. I lie and swing between moderate to severe degree of ME. I can be in such good shape that I manage to go for a walk - until I am suddenly bedridden for weeks. Here I share my experiences on how I personally manage and keep my ME form a bit in check.

- ME: Not to be fooled

It took many years before I really understood what ME is and how I could live with this disease. How would I make the days go by without getting to bed the next day? Such challenges became the new everyday life.
I had to learn to distribute the different tasks I had to do - if I had to take it out of the dishwasher one day, I could not shower the same day. If I had to wash the bathroom, I would take it over several days. One day I washed the sink, the next day I took the toilet - I had to learn to be consistent, otherwise I could risk being bedridden for several weeks.

- Ask for help and advice

I had to learn and go to bed at any time of the day if I felt unwell and exhausted. My sleep was turned upside down, but I just had to do it to avoid and get into a difficult period. I would really say that asking for help is the very best tip I can come up with. Be a little ego sometimes. Get to know yourself. Only you know where your boundaries go. Find out how far you can go before you end up in a dark period. Write it down and use it next time. Then you can make the most of your day and you will not be completely ruined. This is not a cure for ME. On the contrary, these are just personal tips that you can use to make your day a little easier.

- 5 tips for a slightly better everyday life with myalgic encephalopathy (ME)

• Ask for help. It can help make your symptoms easier.
• Sleep / relax when you feel you need to. Give your body signs that it wants to relax, do it.
• Distribute the tasks you have in everyday life over several days. Eg. Do not wash the entire bathroom in one day.
• Don't be afraid to be a little ego. You have to think about yourself and what you can do.
• Find out where your boundaries go. Note it down and use it next time.

Otherwise feel free to let me know if you have any questions or the like - please get in touch via the comment field below, and I will answer as soon as I can.

Sincerely,
Ida Christine

Article: - Living with myalgic encephalopathy (ME)

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What can I do even against pain in muscles, nerves and joints?

1. General exercise, specific exercise, stretching and activity are recommended, but stay within the pain limit. Two walks a day of 20-40 minutes make good for the whole body and sore muscles.

2. Trigger point / massage balls we strongly recommend - they come in different sizes so you can hit well even on all parts of the body. There is no better self help than this! We recommend the following (click the image below) - which is a complete set of 5 trigger point / massage balls in different sizes:

3. Training: Specific training with training tricks of various opponents (such as this complete set of 6 knits of different resistance) can help you train strength and function. Knit training often involves more specific training, which in turn can lead to more effective injury prevention and pain reduction.

4. Pain Relief - Cooling: Biofreeze is a natural product that can relieve pain by cooling the area gently. Cooling is especially recommended when the pain is very severe. When they have calmed down then heat treatment is recommended - it is therefore advisable to have both cooling and heating available.

5. Pain Relief - Heating: Warming up tight muscles can increase blood circulation and reduce pain. We recommend the following reusable hot / cold gasket (click here to read more about it) - which can be used both for cooling (can be frozen) and for heating (can be heated in the microwave).

6. Prevention and healing: Compression noise like that like this can increase blood circulation to the affected area, thereby speeding up the natural healing of injured or worn muscles and tendons.

Recommended products for pain relief in pain

Biofreeze (Cold / cryotherapy)

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